Showing posts with label suppliments. Show all posts
Showing posts with label suppliments. Show all posts

Tuesday, 3 April 2018



So the past few months have been trying to say the least, and everything translates to my skin - you know that saying wearing your heart on your sleeve? Well I wear my "heart" aka stress on my neck, as that's where my Darier's manifests the most.

So I tried:

Bio Oil = fail.

Recovery Balm from Saje = fail.

So next I went back to what I know: lower sugar, no dairy, less stress (isn't that always the goal??) and of course the tried and tested supplements. I went back to taking Vitamin A gels at night, Zinc 15 ml at lunch, and ok, I admit, something new....

I vlogged about it! Check it out:



I ordered Germolene on Amazon: 
https://www.amazon.ca/gp/product/B008D0MLGA/ref=oh_aui_detailpage_o00_s00?ie=UTF8&psc=1

The Darier's White Disorder Facebook Group! https://www.facebook.com/groups/21860644983/ 



A video update! Things are improving with these three things...

Posted by Adrianna on 4/03/2018 05:27:00 pm 6 comments



So the past few months have been trying to say the least, and everything translates to my skin - you know that saying wearing your heart on your sleeve? Well I wear my "heart" aka stress on my neck, as that's where my Darier's manifests the most.

So I tried:

Bio Oil = fail.

Recovery Balm from Saje = fail.

So next I went back to what I know: lower sugar, no dairy, less stress (isn't that always the goal??) and of course the tried and tested supplements. I went back to taking Vitamin A gels at night, Zinc 15 ml at lunch, and ok, I admit, something new....

I vlogged about it! Check it out:



I ordered Germolene on Amazon: 
https://www.amazon.ca/gp/product/B008D0MLGA/ref=oh_aui_detailpage_o00_s00?ie=UTF8&psc=1

The Darier's White Disorder Facebook Group! https://www.facebook.com/groups/21860644983/ 



Tuesday, 6 February 2018


What Works vs. What Doesn't  (...for me anyways)


So I saw Bio Oil on sale at Shoppers Drugmart and decided this was the say I try it. It was hyped a few years ago as "the thing" for skin ailments such as scars, stretch marks and dark spots and some skin issues.

BAD IDEA

I have never felt my skin on fire or itchy as much as I have on Bio Oil

 I took pictures of how it got worse and worse but instead of posting that, which isn't helpful, I decided to do a round up of what IS WORKING for me..



I also have fallen in love with my oil diffuser and essential oil therapy... I have been chatting with a friend who does oil mixology and the top skin soothers are frankincense and lavender. I have those oils 7 drops each in coconut oil applied by a roller vial like this:

So far it's not making it worse nor making it better but I like the way it makes me smell and feel so I will keep on trying it on my pulse points and behind my ears instead of perfumes.

So there's my overview, combine the above with low sugar intake, no dairy, low red meat, low/no cured meats. I do eat gluten and I do like wine and cider every now and then, but no beer, when considering my diet with all the above.

And I have to mention that I am on a low hormone IUD for the first time in my life and it is making my skin FREAK OUT so that is why I am trying all these things because I'm impatient and want a fix NOW instead of waiting out the hormonal flux that is happening now that I am off birth control and with that the regular hormones that came with it from the pill...

I also joined a group on facebook!  Maybe it's for you too? They talk a lot about the medical side of Darier's which I soon might have to look into as I age and deal with a loss of supplementary hormones.

Tell me what is working for you!

What Works vs What Doesn't

Posted by Adrianna on 2/06/2018 02:59:00 pm 1 comment


What Works vs. What Doesn't  (...for me anyways)


So I saw Bio Oil on sale at Shoppers Drugmart and decided this was the say I try it. It was hyped a few years ago as "the thing" for skin ailments such as scars, stretch marks and dark spots and some skin issues.

BAD IDEA

I have never felt my skin on fire or itchy as much as I have on Bio Oil

 I took pictures of how it got worse and worse but instead of posting that, which isn't helpful, I decided to do a round up of what IS WORKING for me..



I also have fallen in love with my oil diffuser and essential oil therapy... I have been chatting with a friend who does oil mixology and the top skin soothers are frankincense and lavender. I have those oils 7 drops each in coconut oil applied by a roller vial like this:

So far it's not making it worse nor making it better but I like the way it makes me smell and feel so I will keep on trying it on my pulse points and behind my ears instead of perfumes.

So there's my overview, combine the above with low sugar intake, no dairy, low red meat, low/no cured meats. I do eat gluten and I do like wine and cider every now and then, but no beer, when considering my diet with all the above.

And I have to mention that I am on a low hormone IUD for the first time in my life and it is making my skin FREAK OUT so that is why I am trying all these things because I'm impatient and want a fix NOW instead of waiting out the hormonal flux that is happening now that I am off birth control and with that the regular hormones that came with it from the pill...

I also joined a group on facebook!  Maybe it's for you too? They talk a lot about the medical side of Darier's which I soon might have to look into as I age and deal with a loss of supplementary hormones.

Tell me what is working for you!

Monday, 4 October 2010

I have had some lovely people contact me over the internet regarding DD and I asked Nicole to share our emails so that what we were talking about may come out and perhaps help others with their understanding of DD.

Here are our emails unedited:

Hello again Adrianna
quick question - I noticed that you alternate supplements

the latest I read was
b6 b12 - 100 mg. daily
vita D - 1000 IU daily
pine bark extract - 30 mg. daily

every other day
zinc 15 mg. 
omega ( I am using borage oil and salmon oil) - do you have other favorites
calcium (how much)
vitamin C ( how much)
probiotics - ( I am going to try "Bio - K") do you have other favorites.  as I too can't have yogurt- dairy

Why alternating some supplements?  and other's daily? 

Thanks so much, I hope I'm not being to pesky with my emails.  

PS- how is the acting going?  I would never have the guts.  

Keep smiling, 
Nicole 
 Aug 24
2010
Hello :)

I find that some of these are too harsh for my system to take every day. Through trial and error I have found out that Vit E makes me break out - so why take it? I find that I eat a lot of fish so I don't need to take Omegas every day. Zinc is very heavy and hard to ingest so I don't have it everyday. Calcium makes me have white spots/calcium deposits in my skin if I take it too often. Vit C makes me nauseated if I take too much and I only take Vit A at night if I have taken Zinc as it helps to ingest it. Probiotics I am taking more frequently because I found a brand (the same as the Pine Bark actually) that doesn't go through my system like a laxative (hey you asked!)

Also there is the money issue - some of these things are expensive and they all add up - I'm a Canadian stage actor that isn't a well known - I don't have a medical plan and most of these wouldn't be supported anyway. So I have to make that call health vs wealth. Its a sad choice but true. This is why I haven't tried the Co q10 Enzymes - thankfully my list seems to work for me right now so its ok. If I find that my body changes over the years and finds this regime ineffective then I will try a new combo :)

Yoga, pilates, reiki, exercise and meditation also helps - its about relaxing your system as the Dariers is a reaction to stress on your body whether it be a tangible thing like food and medication or work load or any other stress - At least this is what I have found. My main food trigger is sugar - it stresses my system so I can't have too much of it in one sitting.

I hope this helps - I'm going to post this on my blog since it was a great question!

-------------------------------------------------------------------------

Nicole to Adrianna Oct 3 2010

yes, of course.  :) The supplements do seem to be helping - I still have a bit of rash, but it is much less itchy.  I've also incorporated Spirulina ("NOW" brand is great)  into my supplements regimen.  I did sneak some sugar - okay a lot of sugar and I paid for it later.  I'm also trying gluten free.  I tried gluten free (no wheat, rye, etc) for about six weeks and figured it wasn't making any difference and so I had my favorite wheat cereal and the itching was much worse for about 3 days after. You mentioned some foods on your blog and I find that foods do really make such a big difference. Thanks for your blog.  Seeing you be so proactive about this disease has really made me even more invested and hopeful in my research.
ttfn :)
Nicole  

DD Community

Posted by Adrianna on 10/04/2010 09:49:00 pm 1 comment

I have had some lovely people contact me over the internet regarding DD and I asked Nicole to share our emails so that what we were talking about may come out and perhaps help others with their understanding of DD.

Here are our emails unedited:

Hello again Adrianna
quick question - I noticed that you alternate supplements

the latest I read was
b6 b12 - 100 mg. daily
vita D - 1000 IU daily
pine bark extract - 30 mg. daily

every other day
zinc 15 mg. 
omega ( I am using borage oil and salmon oil) - do you have other favorites
calcium (how much)
vitamin C ( how much)
probiotics - ( I am going to try "Bio - K") do you have other favorites.  as I too can't have yogurt- dairy

Why alternating some supplements?  and other's daily? 

Thanks so much, I hope I'm not being to pesky with my emails.  

PS- how is the acting going?  I would never have the guts.  

Keep smiling, 
Nicole 
 Aug 24
2010
Hello :)

I find that some of these are too harsh for my system to take every day. Through trial and error I have found out that Vit E makes me break out - so why take it? I find that I eat a lot of fish so I don't need to take Omegas every day. Zinc is very heavy and hard to ingest so I don't have it everyday. Calcium makes me have white spots/calcium deposits in my skin if I take it too often. Vit C makes me nauseated if I take too much and I only take Vit A at night if I have taken Zinc as it helps to ingest it. Probiotics I am taking more frequently because I found a brand (the same as the Pine Bark actually) that doesn't go through my system like a laxative (hey you asked!)

Also there is the money issue - some of these things are expensive and they all add up - I'm a Canadian stage actor that isn't a well known - I don't have a medical plan and most of these wouldn't be supported anyway. So I have to make that call health vs wealth. Its a sad choice but true. This is why I haven't tried the Co q10 Enzymes - thankfully my list seems to work for me right now so its ok. If I find that my body changes over the years and finds this regime ineffective then I will try a new combo :)

Yoga, pilates, reiki, exercise and meditation also helps - its about relaxing your system as the Dariers is a reaction to stress on your body whether it be a tangible thing like food and medication or work load or any other stress - At least this is what I have found. My main food trigger is sugar - it stresses my system so I can't have too much of it in one sitting.

I hope this helps - I'm going to post this on my blog since it was a great question!

-------------------------------------------------------------------------

Nicole to Adrianna Oct 3 2010

yes, of course.  :) The supplements do seem to be helping - I still have a bit of rash, but it is much less itchy.  I've also incorporated Spirulina ("NOW" brand is great)  into my supplements regimen.  I did sneak some sugar - okay a lot of sugar and I paid for it later.  I'm also trying gluten free.  I tried gluten free (no wheat, rye, etc) for about six weeks and figured it wasn't making any difference and so I had my favorite wheat cereal and the itching was much worse for about 3 days after. You mentioned some foods on your blog and I find that foods do really make such a big difference. Thanks for your blog.  Seeing you be so proactive about this disease has really made me even more invested and hopeful in my research.
ttfn :)
Nicole  

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