What Works vs What Doesn't

What Works vs. What Doesn't  (...for me anyways)

So I saw Bio Oil on sale at Shoppers Drugmart and decided this was the say I try it. It was hyped a few years ago as "the thing" for skin ailments such as scars, stretch marks and dark spots and some skin issues.

BAD IDEA

I have never felt my skin on fire or itchy as much as I have on Bio Oil

I took pictures of how it got worse and worse but instead of posting that, which isn't helpful, I decided to do a round up of what IS WORKING for me..



I also have fallen in love with my oil diffuser and essential oil therapy... I have been chatting with a friend who does oil mixology and the top skin soothers are frankincense and lavender. I have those oils 7 drops each in coconut oil applied by a roller vial like this:

So far it's not making it worse nor making it better but I like the way it makes me smell and feel so I will keep on trying it on my pulse points and behind my ears instead of perfumes.

So there's my overview, combine the above with low sugar intake, no dairy, low red meat, low/no cured meats. I do eat gluten and I do like wine and cider every now and then, but no beer, when considering my diet with all the above.

And I have to mention that I am on a low hormone IUD for the first time in my life and it is making my skin FREAK OUT so that is why I am trying all these things because I'm impatient and want a fix NOW instead of waiting out the hormonal flux that is happening now that I am off birth control and with that the regular hormones that came with it from the pill...

I also joined a group on facebook!  Maybe it's for you too? They talk a lot about the medical side of Darier's which I soon might have to look into as I age and deal with a loss of supplementary hormones.

Tell me what is working for you!

Thank you for all your letters!

I just wanted to say thanks: thank you for visiting this site and thanks for sending me your notes, comments and emails about your insights/triumphs/questions/answers/journeys. Thank you for telling your story.

I have a separate blog at my mental health website and I invite guest bloggers there to share their stories - I want to encourage community. And I think I want that here too. So many times I hear such great feedback or even a personal story of how you are dealing with Darier's that I automatically want to ask if I can report it as a blog here. Well, why not?!

If you are willing to share your journey please let me know and I will happily post it here to share to others. 

I have readers from around the world and it would be great to hear how others are doing. 

I would love to know if you are using Pine Bark or if you have found something else that is working for you. If you have had great vs. poor results when following any kind of diet or prescription.

Not many are talking about Darier's White Disorder so we might as well start up our own discussion and fight this together.

Thanks again and I hope to hear from you,

Adrianna

A support group online?

So I came across this community while trying to find out more information about gluten-free vs. Darier's
http://www.mdjunction.com/dariers-disease

I am just now looking around it and wondering if you are online there too!

Do you have any experience with a gluten-free diet in regards to break outs? I would love to know!

Thanks,

Adri