Sunday 23 September 2018



Image source: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6134490/


Posted in the Darier's White Disorder group on Facebook was an article from a naturopathic doctor, and then a comment from someone who has used Magnesium orally to help combat the symptoms of Hailey Hailey disease which is similar but different to Darier's White Disorder. Here have a look: https://en.wikipedia.org/wiki/Hailey%E2%80%93Hailey_disease
Here's the article👉: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6134490/ 

What I found interesting: "therapeutic regime of oral magnesium (300 mg/day)... In June 2017, a trial of oral magnesium chloride 300 mg per day was started. Within 1 month, significant improvement was seen in lesions" 

 I take 100 mg/day as recommended by my family doctor - I'm starting to increase my dose (but slowly as there is a laxative side effect to consider! From 100 mg to 200 mg a day (one pill in the morning and one before bed. What a happy accident to have the Magnesium prescribed to me for my headaches, meanwhile its been possibly helping my skin disorder!

Here's what someone said in the group as a comment and I found really helpful: 


"I have been intimately involved with this protocol for people with closely related Hailey Hailey disease since the original Borghi case study in 2014. At this point, several thousand people with HHD follow this protocol, most with considerable success.

It does not stop outbreaks, but it does limit their frequency, size and greatly speeds healing.

Several things have been found through testing to be important that were not uncovered in the original case study.

The first is that the dose of magnesium that appears to work best is 6 mg/kg of body weight when you have an active outbreak reduced to 4.5 mg/kg when there is no outbreak to maintain the protective effect.

Dosing based on weight rather than the standard approach which is based on age and sex is much more effective. Although based on weight, the dosing is roughly equivalent to 100% of the Recommended Daily Intake for magnesium at the full 6 mg/kg dose.

The other difference that was found to be important compared with the original case study is that this works best when you maintain vitamin D in a range of 40-60 ng/ml (100-150 nmol/L). To maintain the higher end of this range requires a daily dose of vitamin D of roughly 7,000 IU/day. While this range and dosing is considerably higher than that recommended by the national standards organizations, it is perfectly safe as long as you have normal kidney function. Although 4,000 IU/day is the official Upper Safety Limit, the same standards body set 10,000 IU/day as the No Observed Adverse Effect Level (NOAEL). Another way of looking at the safety of this dosing is that the body will produce between 20,000-30,000 IU of vitamin D from sun exposure.

A number of people have added Vitamin C to this regime although there are no studies, formal or informal showing that this makes a difference in Hailey Hailey.

The original case study was based on the use of magnesium chloride, but there has been extensive informal testing of other forms of magnesium and all with the exception of magnesium oxide and hydroxide seem to work equally well.

Some people are very sensitive to the laxative effects of magnesium, but there are several simple steps that minimize them. The first is to switch to an amino acid chelate of magnesium such as lysinate, glycinate and so on. The second is to split the dose in two and take half in the morning, half at night. It also helps to drink an extra glass of water when you take the magnesium effectively lowering the concentration and thereby laxative effect.

Happy to help anyone interested in adopting this regime. Given the success for Hailey Hailey, there is every reason to think it will be useful for Darier's"


 Are you using Magnesium too?

Magnesium as treatment: An article and some thoughts

Posted by Adrianna on 9/23/2018 03:06:00 pm 5 comments



Image source: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6134490/


Posted in the Darier's White Disorder group on Facebook was an article from a naturopathic doctor, and then a comment from someone who has used Magnesium orally to help combat the symptoms of Hailey Hailey disease which is similar but different to Darier's White Disorder. Here have a look: https://en.wikipedia.org/wiki/Hailey%E2%80%93Hailey_disease
Here's the article👉: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6134490/ 

What I found interesting: "therapeutic regime of oral magnesium (300 mg/day)... In June 2017, a trial of oral magnesium chloride 300 mg per day was started. Within 1 month, significant improvement was seen in lesions" 

 I take 100 mg/day as recommended by my family doctor - I'm starting to increase my dose (but slowly as there is a laxative side effect to consider! From 100 mg to 200 mg a day (one pill in the morning and one before bed. What a happy accident to have the Magnesium prescribed to me for my headaches, meanwhile its been possibly helping my skin disorder!

Here's what someone said in the group as a comment and I found really helpful: 


"I have been intimately involved with this protocol for people with closely related Hailey Hailey disease since the original Borghi case study in 2014. At this point, several thousand people with HHD follow this protocol, most with considerable success.

It does not stop outbreaks, but it does limit their frequency, size and greatly speeds healing.

Several things have been found through testing to be important that were not uncovered in the original case study.

The first is that the dose of magnesium that appears to work best is 6 mg/kg of body weight when you have an active outbreak reduced to 4.5 mg/kg when there is no outbreak to maintain the protective effect.

Dosing based on weight rather than the standard approach which is based on age and sex is much more effective. Although based on weight, the dosing is roughly equivalent to 100% of the Recommended Daily Intake for magnesium at the full 6 mg/kg dose.

The other difference that was found to be important compared with the original case study is that this works best when you maintain vitamin D in a range of 40-60 ng/ml (100-150 nmol/L). To maintain the higher end of this range requires a daily dose of vitamin D of roughly 7,000 IU/day. While this range and dosing is considerably higher than that recommended by the national standards organizations, it is perfectly safe as long as you have normal kidney function. Although 4,000 IU/day is the official Upper Safety Limit, the same standards body set 10,000 IU/day as the No Observed Adverse Effect Level (NOAEL). Another way of looking at the safety of this dosing is that the body will produce between 20,000-30,000 IU of vitamin D from sun exposure.

A number of people have added Vitamin C to this regime although there are no studies, formal or informal showing that this makes a difference in Hailey Hailey.

The original case study was based on the use of magnesium chloride, but there has been extensive informal testing of other forms of magnesium and all with the exception of magnesium oxide and hydroxide seem to work equally well.

Some people are very sensitive to the laxative effects of magnesium, but there are several simple steps that minimize them. The first is to switch to an amino acid chelate of magnesium such as lysinate, glycinate and so on. The second is to split the dose in two and take half in the morning, half at night. It also helps to drink an extra glass of water when you take the magnesium effectively lowering the concentration and thereby laxative effect.

Happy to help anyone interested in adopting this regime. Given the success for Hailey Hailey, there is every reason to think it will be useful for Darier's"


 Are you using Magnesium too?

Tuesday 14 August 2018

I have lived through three natural disasters while on vacation.

1. Hurricane Irma
2. out ran a tornado in Florida
3. I just visited Japan during a heat wave so intense they proclaimed it a natural disaster...

I was really scared for my skin. So I took everything I needed  plus sunscreen (which I use Neutrogena SPF 30 moisturizer and LIFE Brand Sunthera SPF 60 Spray). I even learned from the locals and bought a sun umbrella/parasol, an imabari (or Japanese face towel made for you to wipe the sweat from your face, which was always dripping), and a fan.

at Itsukushima, also known as Miyajima, a small island in Hiroshima Bay
It was in the 40 degree celsius range that day

Throughout the trip I tried to stay hydrated but water sometimes just didn't cut it, so again, learning from the locals, I bought Pocari Sweat to replenish electrolytes. Most of the time I felt like I was on a boat, the horizon always tilting from my heat exhaustion. Many Japanese people would stare at me and I can only wonder if it was just my red hair they were looking at or if their inner monologue was "why would you come here in the summer?!"

I pushed through. It was an amazing trip with highs and lows, but never the lows being in temperature!

But I didn't have a flare up... Sure I had a few red bumps where ever there was friction like on the backs of my knees, under my bra line, and yes even in my groin creases. but never on my neck and back were I usually get my flare ups.

I stuck to my supplements, stayed away from dairy, was on top of hydrating, and used my vitamin A cream each night (stashed in the refrigerator to make it extra calming from the cold!) and used Germolene for spot treatment on the places that had bumps from sweat and friction. Plus having cool showers with no soap, just rinsing at the end of the day was a great way to feel a bit cooler before bed and cleanse my body too.

Case in point:

that sheen is from sweat and sunscreen

Note no flare up in 40 degree heat at Fushimi Inari Taisha

No burn and no flare in Harajuku!

I was going to fight my partner in going to Japan in the summer due to my disorder, but I said no, my disorder doesn't define me - and I'm so glad I did! Granted it was still a crazy idea to go in the heat, but who could have known it would be record breaking and as terrible as it was. 

Still, I'm glad I didn't let my skin dictate what adventures I can go on, and I was pleasantly surprised to see that my fears about the heat and my Darier's was unfounded.

How do you deal with the heat and your Darier's?




We can't always blame the heat...

Posted by Adrianna on 8/14/2018 10:54:00 am No comments

I have lived through three natural disasters while on vacation.

1. Hurricane Irma
2. out ran a tornado in Florida
3. I just visited Japan during a heat wave so intense they proclaimed it a natural disaster...

I was really scared for my skin. So I took everything I needed  plus sunscreen (which I use Neutrogena SPF 30 moisturizer and LIFE Brand Sunthera SPF 60 Spray). I even learned from the locals and bought a sun umbrella/parasol, an imabari (or Japanese face towel made for you to wipe the sweat from your face, which was always dripping), and a fan.

at Itsukushima, also known as Miyajima, a small island in Hiroshima Bay
It was in the 40 degree celsius range that day

Throughout the trip I tried to stay hydrated but water sometimes just didn't cut it, so again, learning from the locals, I bought Pocari Sweat to replenish electrolytes. Most of the time I felt like I was on a boat, the horizon always tilting from my heat exhaustion. Many Japanese people would stare at me and I can only wonder if it was just my red hair they were looking at or if their inner monologue was "why would you come here in the summer?!"

I pushed through. It was an amazing trip with highs and lows, but never the lows being in temperature!

But I didn't have a flare up... Sure I had a few red bumps where ever there was friction like on the backs of my knees, under my bra line, and yes even in my groin creases. but never on my neck and back were I usually get my flare ups.

I stuck to my supplements, stayed away from dairy, was on top of hydrating, and used my vitamin A cream each night (stashed in the refrigerator to make it extra calming from the cold!) and used Germolene for spot treatment on the places that had bumps from sweat and friction. Plus having cool showers with no soap, just rinsing at the end of the day was a great way to feel a bit cooler before bed and cleanse my body too.

Case in point:

that sheen is from sweat and sunscreen

Note no flare up in 40 degree heat at Fushimi Inari Taisha

No burn and no flare in Harajuku!

I was going to fight my partner in going to Japan in the summer due to my disorder, but I said no, my disorder doesn't define me - and I'm so glad I did! Granted it was still a crazy idea to go in the heat, but who could have known it would be record breaking and as terrible as it was. 

Still, I'm glad I didn't let my skin dictate what adventures I can go on, and I was pleasantly surprised to see that my fears about the heat and my Darier's was unfounded.

How do you deal with the heat and your Darier's?




Tuesday 1 May 2018

Warning, I don't holdback and talk about how gross my nails can get because of DWD...

I have always had terrible nails. I have never not picked at my nails and throughout my life they look like raw meat: red, chapped, falling apart... I rarely have anything that goes past my finger to form a "nail" as in they never grow that far. I always thought it was my anxiety, as a coping method I pick my nails, especially if there is any hangnails and that happens ALL the time.

I recently saw in the Facebook Group that nails get the Darier's White Disorder treatment, meaning they get messed up. Now my thin, brittle, red, chapped fingernails make more sense. And my toes, oh dear, it's like a Victorian monster down there! Frankenstein's toenails! They grow weirdly, like on angles, split, ingrown... it's just, gross. And so my anxiety sets to work and I usually pick them down to the quick/cuticle. I used to paint my fingernails to give them more structure, but working at a historic museum I can't have painted nails as it's not exactly accurate :P But my toenails are ALWAYS painted so they don't look so gross, though it is weird to paint toenails that grow every which way - I usually trim my toenails down as far as I can to avoid splitting and showcasing those weird Franken-Nails. 

I have found that with the supplements I take to combat DWD it does end up helping my nails, (and hair!), as things like omega fats and zinc are good for that. My love of eating fish (hello sushi) helps too. But then I did a google search and found this:

Biotin (a.k.a. vitamin H) can improve hair that is splitting or thinning as well as strengthen weakened nails. Taken with zinc and the corticosteroid clobetasol propionate, biotin has even been used to treat alopecia, an autoimmune skin disease marked by the loss of hair.

Has anyone ever tried using Vitamin H as a supplement? I think I may have to ask my doctor about this! 

I also read somewhere that DWD nails are also susceptible to build up under their non existent nails and I have to say I believe it - I mean look at mine: I barely HAVE nails and I am typing all day so how do I get gross stuff under there?!


These are actually quite healthy for me with little to no splits and hangnails. I guess putting the zinc back in daily really helps. 

Do you have really sore or gross nails too? What do you use to help it?

Do you have monster nails?

Posted by Adrianna on 5/01/2018 09:08:00 am 7 comments

Warning, I don't holdback and talk about how gross my nails can get because of DWD...

I have always had terrible nails. I have never not picked at my nails and throughout my life they look like raw meat: red, chapped, falling apart... I rarely have anything that goes past my finger to form a "nail" as in they never grow that far. I always thought it was my anxiety, as a coping method I pick my nails, especially if there is any hangnails and that happens ALL the time.

I recently saw in the Facebook Group that nails get the Darier's White Disorder treatment, meaning they get messed up. Now my thin, brittle, red, chapped fingernails make more sense. And my toes, oh dear, it's like a Victorian monster down there! Frankenstein's toenails! They grow weirdly, like on angles, split, ingrown... it's just, gross. And so my anxiety sets to work and I usually pick them down to the quick/cuticle. I used to paint my fingernails to give them more structure, but working at a historic museum I can't have painted nails as it's not exactly accurate :P But my toenails are ALWAYS painted so they don't look so gross, though it is weird to paint toenails that grow every which way - I usually trim my toenails down as far as I can to avoid splitting and showcasing those weird Franken-Nails. 

I have found that with the supplements I take to combat DWD it does end up helping my nails, (and hair!), as things like omega fats and zinc are good for that. My love of eating fish (hello sushi) helps too. But then I did a google search and found this:

Biotin (a.k.a. vitamin H) can improve hair that is splitting or thinning as well as strengthen weakened nails. Taken with zinc and the corticosteroid clobetasol propionate, biotin has even been used to treat alopecia, an autoimmune skin disease marked by the loss of hair.

Has anyone ever tried using Vitamin H as a supplement? I think I may have to ask my doctor about this! 

I also read somewhere that DWD nails are also susceptible to build up under their non existent nails and I have to say I believe it - I mean look at mine: I barely HAVE nails and I am typing all day so how do I get gross stuff under there?!


These are actually quite healthy for me with little to no splits and hangnails. I guess putting the zinc back in daily really helps. 

Do you have really sore or gross nails too? What do you use to help it?

Monday 23 April 2018

Update: all the changes and tweaks and ongoing therapy is working itself out! I'm not "cured" or anything but it is a helluva lot better than a few months ago when I had to hide under scarves and cry from the pain...

Right now this is what it looks like:
 

Not too shabby! Of course the pink bumps are never going to be completely gone (or never say never? *hopeful*) but this is so much better than the red rash and open weeping sores I had this winter.

SO! What is my line-up of therapy and goods to bring my DWD under control? I'm so glad you asked:

-no cow dairy
-the least amount of sugar
-lots of water
*I do drink coffee, tea, and drink cider and wine but always in moderation/occasionally






Daily
-50 mg Pine Bark Extract pill
-Vitamin B (either B2 100 mg or a B100 complex) pill
-15 mg zinc pill
-100 mg magnesium (doctor said it will help with my headaches)
-lavender pillow mist + frankincense/lavender oil mix on pulse points (great for anxiety and to sleep)
-meditation 5 mins (needing to get this up to 10 in 6 months)
-Vitamin A 10000 IU pill (at night)
-Vitamin A cream (on affected area at night)
-SPF 15 or higher (depending on season and outdoor activity but ALWAYS at least 15)

Sometimes
-Multivitamin
-Vitamin D (on cloudy/stay inside days)
-probiotics
-CBD pills for anxiety; situational
-Germolene for spot treatment (when the pink bumps become redder)

So there ya go! That's what I'm doing, remember to talk to your dermo and/or doctor or health care professional when trying new things - and on that note what is working for you?

I haven't had to use Germolene in over a week! And I am glad of it, this stuff is potent and shouldn't be used daily.

I am drinking soy milk instead of any other dairy alternative so I can try and keep my hormone levels up too, at least that's the idea - I don't know if it's helping at all but tofu and soy milk are a part of my diet since I left birth control for an IUD.

I hope this helps you on your journey to wellness!




IT WORKS! An Update on how it's going

Posted by Adrianna on 4/23/2018 10:16:00 pm 11 comments

Update: all the changes and tweaks and ongoing therapy is working itself out! I'm not "cured" or anything but it is a helluva lot better than a few months ago when I had to hide under scarves and cry from the pain...

Right now this is what it looks like:
 

Not too shabby! Of course the pink bumps are never going to be completely gone (or never say never? *hopeful*) but this is so much better than the red rash and open weeping sores I had this winter.

SO! What is my line-up of therapy and goods to bring my DWD under control? I'm so glad you asked:

-no cow dairy
-the least amount of sugar
-lots of water
*I do drink coffee, tea, and drink cider and wine but always in moderation/occasionally






Daily
-50 mg Pine Bark Extract pill
-Vitamin B (either B2 100 mg or a B100 complex) pill
-15 mg zinc pill
-100 mg magnesium (doctor said it will help with my headaches)
-lavender pillow mist + frankincense/lavender oil mix on pulse points (great for anxiety and to sleep)
-meditation 5 mins (needing to get this up to 10 in 6 months)
-Vitamin A 10000 IU pill (at night)
-Vitamin A cream (on affected area at night)
-SPF 15 or higher (depending on season and outdoor activity but ALWAYS at least 15)

Sometimes
-Multivitamin
-Vitamin D (on cloudy/stay inside days)
-probiotics
-CBD pills for anxiety; situational
-Germolene for spot treatment (when the pink bumps become redder)

So there ya go! That's what I'm doing, remember to talk to your dermo and/or doctor or health care professional when trying new things - and on that note what is working for you?

I haven't had to use Germolene in over a week! And I am glad of it, this stuff is potent and shouldn't be used daily.

I am drinking soy milk instead of any other dairy alternative so I can try and keep my hormone levels up too, at least that's the idea - I don't know if it's helping at all but tofu and soy milk are a part of my diet since I left birth control for an IUD.

I hope this helps you on your journey to wellness!




Tuesday 3 April 2018



So the past few months have been trying to say the least, and everything translates to my skin - you know that saying wearing your heart on your sleeve? Well I wear my "heart" aka stress on my neck, as that's where my Darier's manifests the most.

So I tried:

Bio Oil = fail.

Recovery Balm from Saje = fail.

So next I went back to what I know: lower sugar, no dairy, less stress (isn't that always the goal??) and of course the tried and tested supplements. I went back to taking Vitamin A gels at night, Zinc 15 ml at lunch, and ok, I admit, something new....

I vlogged about it! Check it out:



I ordered Germolene on Amazon: 
https://www.amazon.ca/gp/product/B008D0MLGA/ref=oh_aui_detailpage_o00_s00?ie=UTF8&psc=1

The Darier's White Disorder Facebook Group! https://www.facebook.com/groups/21860644983/ 



A video update! Things are improving with these three things...

Posted by Adrianna on 4/03/2018 05:27:00 pm 6 comments



So the past few months have been trying to say the least, and everything translates to my skin - you know that saying wearing your heart on your sleeve? Well I wear my "heart" aka stress on my neck, as that's where my Darier's manifests the most.

So I tried:

Bio Oil = fail.

Recovery Balm from Saje = fail.

So next I went back to what I know: lower sugar, no dairy, less stress (isn't that always the goal??) and of course the tried and tested supplements. I went back to taking Vitamin A gels at night, Zinc 15 ml at lunch, and ok, I admit, something new....

I vlogged about it! Check it out:



I ordered Germolene on Amazon: 
https://www.amazon.ca/gp/product/B008D0MLGA/ref=oh_aui_detailpage_o00_s00?ie=UTF8&psc=1

The Darier's White Disorder Facebook Group! https://www.facebook.com/groups/21860644983/ 



Wednesday 14 February 2018



Seriously. This is the worst my Darier's has been since back in my 20s when I didn't know what it was. It is sore, weepy, itchy, and this is better than last week - granted I needed to let my skin calm down after me trying to put everything on it (TL;DR Bio Oil will mess you UP!)

The pictures can't really capture how red/scaly/irritated/ it is (thanks iphone camera and my lame photography skills) and it's spreading past my usual areas to upper neck and my back... I haven't been this concerned in a while. Yes, I know it's only been 2 months since I went on the IUD and I hear that changing your hormones can affect your Darier's and I have always believed that - I mean, come once a month my "lady time" makes my skin flare up to the point of tears. Now it's at that as base level and it's driving me crazy....





So I'm doubling up on Vitamin A topically and orally in pill form. I'm even splitting the gel cap of the 10000 IU and putting it on the saddest part on my right shoulder/neck. Not applying cover up and letting it breath, lots of scarves and turtlenecks... I am going to talk to my doctor about hormone therapy to see if I can settle this down with more estrogen or progestin, as the low dose from switching t an IUD is the ONLY thing that has changed - I still eat the same, drink the same, and my supplements haven't changed. So that's gotta be it. 

I don't know if I can ride out my natural body chemistry - my friend said it took her body about 6 months to adjust to the IUD after doing pills for most of her life and that's the same boat as me. But, she didn't have her skin reflect her inner chemical circus! 

Gah. This is the worst. 

This is the worst.

Posted by Adrianna on 2/14/2018 12:01:00 pm 6 comments



Seriously. This is the worst my Darier's has been since back in my 20s when I didn't know what it was. It is sore, weepy, itchy, and this is better than last week - granted I needed to let my skin calm down after me trying to put everything on it (TL;DR Bio Oil will mess you UP!)

The pictures can't really capture how red/scaly/irritated/ it is (thanks iphone camera and my lame photography skills) and it's spreading past my usual areas to upper neck and my back... I haven't been this concerned in a while. Yes, I know it's only been 2 months since I went on the IUD and I hear that changing your hormones can affect your Darier's and I have always believed that - I mean, come once a month my "lady time" makes my skin flare up to the point of tears. Now it's at that as base level and it's driving me crazy....





So I'm doubling up on Vitamin A topically and orally in pill form. I'm even splitting the gel cap of the 10000 IU and putting it on the saddest part on my right shoulder/neck. Not applying cover up and letting it breath, lots of scarves and turtlenecks... I am going to talk to my doctor about hormone therapy to see if I can settle this down with more estrogen or progestin, as the low dose from switching t an IUD is the ONLY thing that has changed - I still eat the same, drink the same, and my supplements haven't changed. So that's gotta be it. 

I don't know if I can ride out my natural body chemistry - my friend said it took her body about 6 months to adjust to the IUD after doing pills for most of her life and that's the same boat as me. But, she didn't have her skin reflect her inner chemical circus! 

Gah. This is the worst. 

Tuesday 6 February 2018


What Works vs. What Doesn't  (...for me anyways)


So I saw Bio Oil on sale at Shoppers Drugmart and decided this was the say I try it. It was hyped a few years ago as "the thing" for skin ailments such as scars, stretch marks and dark spots and some skin issues.

BAD IDEA

I have never felt my skin on fire or itchy as much as I have on Bio Oil

 I took pictures of how it got worse and worse but instead of posting that, which isn't helpful, I decided to do a round up of what IS WORKING for me..



I also have fallen in love with my oil diffuser and essential oil therapy... I have been chatting with a friend who does oil mixology and the top skin soothers are frankincense and lavender. I have those oils 7 drops each in coconut oil applied by a roller vial like this:

So far it's not making it worse nor making it better but I like the way it makes me smell and feel so I will keep on trying it on my pulse points and behind my ears instead of perfumes.

So there's my overview, combine the above with low sugar intake, no dairy, low red meat, low/no cured meats. I do eat gluten and I do like wine and cider every now and then, but no beer, when considering my diet with all the above.

And I have to mention that I am on a low hormone IUD for the first time in my life and it is making my skin FREAK OUT so that is why I am trying all these things because I'm impatient and want a fix NOW instead of waiting out the hormonal flux that is happening now that I am off birth control and with that the regular hormones that came with it from the pill...

I also joined a group on facebook!  Maybe it's for you too? They talk a lot about the medical side of Darier's which I soon might have to look into as I age and deal with a loss of supplementary hormones.

Tell me what is working for you!

What Works vs What Doesn't

Posted by Adrianna on 2/06/2018 02:59:00 pm 1 comment


What Works vs. What Doesn't  (...for me anyways)


So I saw Bio Oil on sale at Shoppers Drugmart and decided this was the say I try it. It was hyped a few years ago as "the thing" for skin ailments such as scars, stretch marks and dark spots and some skin issues.

BAD IDEA

I have never felt my skin on fire or itchy as much as I have on Bio Oil

 I took pictures of how it got worse and worse but instead of posting that, which isn't helpful, I decided to do a round up of what IS WORKING for me..



I also have fallen in love with my oil diffuser and essential oil therapy... I have been chatting with a friend who does oil mixology and the top skin soothers are frankincense and lavender. I have those oils 7 drops each in coconut oil applied by a roller vial like this:

So far it's not making it worse nor making it better but I like the way it makes me smell and feel so I will keep on trying it on my pulse points and behind my ears instead of perfumes.

So there's my overview, combine the above with low sugar intake, no dairy, low red meat, low/no cured meats. I do eat gluten and I do like wine and cider every now and then, but no beer, when considering my diet with all the above.

And I have to mention that I am on a low hormone IUD for the first time in my life and it is making my skin FREAK OUT so that is why I am trying all these things because I'm impatient and want a fix NOW instead of waiting out the hormonal flux that is happening now that I am off birth control and with that the regular hormones that came with it from the pill...

I also joined a group on facebook!  Maybe it's for you too? They talk a lot about the medical side of Darier's which I soon might have to look into as I age and deal with a loss of supplementary hormones.

Tell me what is working for you!

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