Showing posts with label share. Show all posts
Showing posts with label share. Show all posts

Thursday, 3 November 2016

SO! A comment came through that said "New medication from my dermatologist is tacrolimus ointment. Calms everything down and doesn't have any side effects. A lot of the drugs and creams actually make you itch worse." Thanks for sharing Charlene!



I asked my dermo about it and she said the (paraphrasing) following:

It's "street name" is Protopic, and it's a non-steroid cream so unlike Accutane dermatologists can offer it to people like us with little worry because the extended use of creams for us (as we are lifers with DWD) is okay without the nasty side effects of steroids (hair loss, weight gain/loss...)

I didn't pick any up because it's new and exciting which means = $ expensive $
And you need a prescription for it (why if it has little to no side effects and doesn't have steroids?!) 

It sounds like something I might be interested in a few years when the hype dies down and I hit my 40s. 

Here's what the internet says: 
This form of tacrolimus is used on the skin to treat a skin condition called eczema(atopic dermatitis) in patients who have not responded well to (or should not use) other eczema medications. Tacrolimus belongs to a class of drugs known as topical calcineurin inhibitors (TCIs).
And another write up from Rexall:
Tacrolimus belongs to the class of medications called immunosuppressants. This medication is used on a short-term or intermittent basis to treat atopic dermatitis (eczema). It is also used to prevent eczema flare-ups.This medication works on certain areas of the immune system that may be involved in developing this skin condition. It is used when standard treatments have not worked or if there is a reason they cannot be used.

SO! Charlene and anyone else willing to tell us about how their use of Protopic/Tacrolimus is going? Any reviews?

SO! A comment came through that said "New medication from my dermatologist is tacrolimus ointment. Calms everything down and doesn't have any side effects. A lot of the drugs and creams actually make you itch worse." Thanks for sharing Charlene!



I asked my dermo about it and she said the (paraphrasing) following:

It's "street name" is Protopic, and it's a non-steroid cream so unlike Accutane dermatologists can offer it to people like us with little worry because the extended use of creams for us (as we are lifers with DWD) is okay without the nasty side effects of steroids (hair loss, weight gain/loss...)

I didn't pick any up because it's new and exciting which means = $ expensive $
And you need a prescription for it (why if it has little to no side effects and doesn't have steroids?!) 

It sounds like something I might be interested in a few years when the hype dies down and I hit my 40s. 

Here's what the internet says: 
This form of tacrolimus is used on the skin to treat a skin condition called eczema(atopic dermatitis) in patients who have not responded well to (or should not use) other eczema medications. Tacrolimus belongs to a class of drugs known as topical calcineurin inhibitors (TCIs).
And another write up from Rexall:
Tacrolimus belongs to the class of medications called immunosuppressants. This medication is used on a short-term or intermittent basis to treat atopic dermatitis (eczema). It is also used to prevent eczema flare-ups.This medication works on certain areas of the immune system that may be involved in developing this skin condition. It is used when standard treatments have not worked or if there is a reason they cannot be used.

SO! Charlene and anyone else willing to tell us about how their use of Protopic/Tacrolimus is going? Any reviews?

Thursday, 27 November 2014



I just wanted to say thanks: thank you for visiting this site and thanks for sending me your notes, comments and emails about your insights/triumphs/questions/answers/journeys. Thank you for telling your story.

I have a separate blog at my mental health website and I invite guest bloggers there to share their stories - I want to encourage community. And I think I want that here too. So many times I hear such great feedback or even a personal story of how you are dealing with Darier's that I automatically want to ask if I can report it as a blog here. Well, why not?!

If you are willing to share your journey please let me know and I will happily post it here to share to others. 


I have readers from around the world and it would be great to hear how others are doing. 

I would love to know if you are using Pine Bark or if you have found something else that is working for you. If you have had great vs. poor results when following any kind of diet or prescription.

Not many are talking about Darier's White Disorder so we might as well start up our own discussion and fight this together.

Thanks again and I hope to hear from you,

Adrianna



I just wanted to say thanks: thank you for visiting this site and thanks for sending me your notes, comments and emails about your insights/triumphs/questions/answers/journeys. Thank you for telling your story.

I have a separate blog at my mental health website and I invite guest bloggers there to share their stories - I want to encourage community. And I think I want that here too. So many times I hear such great feedback or even a personal story of how you are dealing with Darier's that I automatically want to ask if I can report it as a blog here. Well, why not?!

If you are willing to share your journey please let me know and I will happily post it here to share to others. 


I have readers from around the world and it would be great to hear how others are doing. 

I would love to know if you are using Pine Bark or if you have found something else that is working for you. If you have had great vs. poor results when following any kind of diet or prescription.

Not many are talking about Darier's White Disorder so we might as well start up our own discussion and fight this together.

Thanks again and I hope to hear from you,

Adrianna